Sunday, May 06, 2018

My Brain is Afraid of a Teenage Boy




    Due to a perfect storm of circumstances: A lupus diagnosis which caused me to begin treatment with Plaquenil, which increased my chances for complications during pregnancy while also making my birth control both less effective and more important than ever; I recently had to switch my method for preventing babies from growing in my womb against my will.  This than coupled with a failed attempt at an IUD and a resolve not to try and start anything new until after my vacation to Italy THUS a short break from birth control entirely which resulted in the reason for this post – an alarming change in my hormone levels after over 10 years of being on the birth control patch.
                The side effects of this withdrawal have been no end of charming.  Lots of aches and pains, including an increase in the number of really bad headaches I have.  Mood swings that take me everywhere from anxious to ecstatic to crying to dancing around the living room in my underwear.  But the best part has been the insanely intense dreams.
                This week was particularly bad as I had 4 consecutive dreams about my ex boyfriend.  As I have been married for almost 14 years now, having that many dreams in a row about a guy I broke up with over 16.5 years ago is alarming enough as it is.  But the real stinger is that this particular ex and I had a rather upsetting history: essentially I hated who I was when I was with him, (co-dependent and insecure) and his behavior towards me was unfortunately what I have no other way to label but as abusive; in multiple realms.  No, he never left a mark on me, but he still hurt me physically from time-to-time.  No he almost never behaved this way in public, but he did make me constantly feel as though I wasn’t pretty, funny, or good enough by the things that he said to me and the way he talked about me.  No he didn’t put me down when my friends were around, but he yelled at me and swore at me and argued with me so often, I became intensely afraid of conflict of any sort, and not just from him.  I told myself his behavior was my fault for two years before I was finally forced to admit that just being a better girlfriend was never going to change how he treated me.
                Now it’s important to note here that shortly after we broke up, apologies were made on both sides, (me for my emotionally manipulative and co-dependent behavior, he for just the general sense of all I felt he had done wrong, even if he couldn’t fully understand the ways I believed he had injured me.)  Since then I have talked, written, and thought over everything that happened until I felt a sincere sense of closure in each area of injury that occurred.  More recently, I even had a conversation with his cousin who was one of my closest friends in High School, and was finally able to convey to him how bad things really were and how deeply I had regretted not getting to stay a part of his family.  The cousin, who has become a close friend again, gave me a final sense of resolution by assuring me his family didn’t think ill of me, and we both expressed our regrets at not being able to remain good friends after the breakup despite our good relationship prior to that.  It was great, I felt like I got a brother back.  I have become good friends with his wife, and we currently go to the same church which his cousin does not attend.
                In addition, I have since gained a world more of confidence, self-worth, and pride about the life I live.  I am in a marriage that I think I can objectively say is very healthy, where I am loved, treasured, and deeply valued every day.  I continue to grow in knowledge, in love, and am encouraged to go outside my comfort zone and push my boundaries continually towards self improvement.  So by all measurable standards, I have healed from this ordeal as much as a person possibly could do.
                And yet, for years I have had continual dreams wherein this ex tries to win me back, tries to establish a deep relationship with me again, and in the worst cases, literally forces me back to his side with the knowledge that I have lost the husband I cherish so much and who helped me gain so much peace of mind over my past.
                Normally these dreams happen once every month or two.  Which is why this week was so incredibly difficult, because I had them every single day instead for just long enough to make me wonder if I needed some kind of special therapy or counseling.
                And here’s the crazy thing – objectively, it makes no sense for this person to give me nightmares.  Because in addition to the closure I made sure to achieve and the length of time that has passed since we even so much as last saw each other, the person I am afraid of was a teenage boy, who was 16-18 years old during the time of my torment.  Half of our messed-up relationship can be easily explained by the fact that at the time we were too young and dumb to know how to have a functional relationship in the first place.  It didn’t help matters that about nine months in, I was also diagnosed with depression.  Nevermind that neither I nor my family understood how to handle this - a teenage boyfriend can be one of the most helpless people on Earth when it comes to dealing with such a real-world problem for the first time.  So much time, and life, and experience, and healing has happened since then.
                My point is, this person doesn’t even exist anymore.  He hasn’t for years.  My ex is now a man with one divorce under his belt and a new wife, baby, and adopted daughter.  He is not the 17-year-old that made me feel ugly and awful. He hasn’t been that person for at least 15 years, to the best of my reckoning.  He is an entirely different person than the one who haunts my dreams.  He doesn’t look the same, care about the same things, or even act the same in many ways, (at least I hope so for his wife and children’s sake.)
                In trying to figure out why these dreams have continued to torment me for years no matter what I do to obtain proper closure, it was these string of 4 in a row that finally caused me to realize, much like Sarah in Labyrinth, how nonsensical the idea of me still being frightened of this person is.  After day four I just wanted to yell at the top of my lungs, “You have no power over me!”
                And even if somehow my teenage tormentor DID still exist, who is there left to torment?  I am not a 17-year-old girl, either.  I am 35 years old.  I have self-published 5 novels.  I have been a devoted and wildly happy wife for almost 15 years now.  I have traveled around the world to almost 12 different countries already.  I married a man who makes me laugh so hard I cry sometimes, and who can laugh just at hard at my jokes.  I have a career that can support me if I am on my own, I am an Aunt to an amazing niece, I am going to Italy with my youngest sister for her first international trip in a matter of weeks – in short I have an entire life I never had when I allowed this person to wound me.  There is almost none of the “me” left that he would recognize - I am fulfilled and delighted and can’t wait to see what the world holds next for me.  Yes, I also have several different medical conditions I have had and am continuing to learn how to manage, but I am doing so with an incredible partner at my side and an amazing network of family and friends.  I have a church I love and a home I am proud of and an entire world he knows nothing about and can never touch, let alone take away from me.  And it would be INCREDIBLY arrogant of me to believe he would want to, even if he could.  We quite simply have almost nothing to do with each other anymore, in the healthiest way possible.
                So no matter what my dreams decide to do to me in future, at least I can know the futility of those dreams to change my life in any material way.  They may make me feel weird for the duration of a day, but much like everything else that was as insubstantial as our silly high school romance, they fade away to make room for bigger and better and happier things.
                And that is something I refuse to be afraid of.

Saturday, October 24, 2015

To My Fellow Women (aka, can we knock off all the passive aggressive and just straightforward aggressive nonsense?)

Dear Women,

I want you to know, that I have your back.  We are all in this together.  Being a woman is hard.  And I want to contribute to the growing culture of inclusion and support, not the opposite one of judgement and tearing each other down that we all faced growing up, most especially in middle school.  We have all been through enough.  We all have enough on our plates.  Shouldn't we be working together to build each other up?

With that in mind, here are some thoughts.

I am in my early 30s.  Due to some fairly recent discoveries about family health histories and diseases, it seems pretty likely that my husband and I will  not be having children.  Not 100% impossible or improbable; but at the moment I am basing my life choices on the fact that children will not be a part of our future.  Adoption is not currently a viable option for us.  We chose early on not to have children, and now with the new information and circumstances facing us, we are glad we made the choice we did.

This does not mean that I don't love children.  Anyone who has seen me with my niece can attest to the fact that I am crazy about her.  Anyone who has seen me with many of our friends' children could confirm that I often enjoy and like to help out with kids.  I will change diapers, I will sing songs, and I will follow kids while they run around the room if that is the only way to get them to eat; popping food into their mouth whenever they pause for the smallest moment.  And I couldn't be prouder of all the women I know who are mothers.  My mother raised three girls, and I don't know how she did it.  I admire each and every one of you for doing what I chose not to; for having the strength and moral courage to be a mother every day, in the home or out, raising the future of our world, and still finding time to love, smile, and laugh.  You are all incredible, and I am amazed every day at my mom friends and what I see them go through.  I've never been prouder of my own sister than when I saw her become a mother, (and a fantastic one at that.)  You guys rock and I hope you know that even though I don't have my own kids, I am always happy to help with yours if you need me.  It's a big job, raising kids.  Every single woman should love and support you in that endeavor.

With that in mind, could you please not judge me, and other women like me who don't have our own children?  I have my reasons; some practical, some painful, and all very personal.  I know other women have theirs, and want their choices to be respected as much as I do my own.  I don't think any less of those of you who chose what I didn't.  On  the contrary, I'm proud of you!  Please respect my choice and the choice of other women in this area.  Please don't constantly ask if I have kids, and why not when you find out I don't, especially if we're meeting for the first time or you don't know me well.  You don't know what pains and heartaches each of us women without children feel.  We're all in this boat for different reasons, and we're all unique with the whys and if it's what we really wanted or not, but we all share the same hope that our situation will be given the compassion and respect it deserves.  I know my life may look different, but I've made my peace with that and am truly happy.  Maybe when I'm older I'll feel different, but for now I'm ok.  Really.  Please believe that.

And thank you to the many women I love and know who already do this for me.  I 100% want to see you all succeed as mothers.  I hope you want to see me enjoy traveling, providing for the birds in the forest that backs our home, and being the best Aunt and friend I can be.  Those are the things I love and put my heart and soul into.  It takes all kinds of women to make this world go round, right?  It's okay if we're not all mothers.  It's great that so many of us are.

I am an introvert.  I don't like big parties.  I like quiet gatherings and one-on-one time with friends.  I'm not anti-social, I don't need to be brought out of my shell, and when I'm really engaged, my face will light up like Christmas and I won't ever want to stop talking to you or have you go home until we've both run of out things to say.  I don't do well at baby showers or bridal showers or other gatherings where women are all making crafts together or doing other domestic projects.  I'm not good at exciting bachelorette parties or trips to the salon.  Those are just not my strong points; that's just not me.  And I'm happy not being super social or a super girly girl.  Thanks to all the women who've given me my space or took the time to have one-on-one get togethers with me, or small dinner parties with great conversations, or sat over a cup of coffee or took a walk with me.  That really makes me feel loved, special, and a part of something magical.  Thanks for all the times you've shared that with me.

And to every woman who is a social butterfly, who is extroverted and proud to be so; who is the life of the gathering, can make the best quilt, throw the best dinner party, or has the best manicure, I love you.  You women who can perfectly put on makeup or do a fantastic hairstyle on yourself; I am so impressed with you.  Thanks for not laughing at my shortcomings, while I admire that you can do what I cannot.  I am so glad this world is full of women who can craft and sew and cook and party all night long.  You're beautiful and I'm in awe of you.

I also don't have a fancy job.  I got a basic liberal arts type degree.  I worked in retail to pay for college, then worked in a delivery center for high end furniture, and then with a gov't contracted company that handles federal services.  I don't have a specialization, I don't directly use my degree in my job; I make enough to pay the bills, but rely on my husband's salary for all the other things we are blessed to enjoy at this stage in our life.  I self-publish books, but I'm not famous, not well known, not read by anyone other than my closest friends and family.  I don't have a lot of ambition or drive.  And I'm okay with that.  Please respect that I don't have a high-powered career, that I'm not ever going to be a CEO or Real Estate Maven, or Self-made Millionaire.  And I'm okay with that.  I'm okay making just enough to take care of myself if I ever don't have a spouse's income to supplement my own.  Please don't judge me for that.

And to all you women who are lawyers and doctors and famous authors, and singers and actresses and scientists and a multitude of other amazing careers and professions, thank you for setting the bar there!!! Thank you for showing my niece that she can do any of those things when she grows up if she wants to.  Thank you for trail blazing and fighting for equal pay, and working full  and overtime in and out of the home.  I love living in a world with so many successful women.  I love seeing women like Taylor Swift in the public eye, and I enjoy her newest music, even if the country wasn't my thing, and I love the kind of person she appears to be, who takes time for fans and donates money to those who need it, and is crazy successful at what she does.  And I could not be more impressed with my friend who designs e-learning courses for companies all over the world and has already successfully run her own business before that and is savvy and sophisticated while still raising a toddler and traveling internationally.  These kinds of Type A women who know what they want from life and drive themselves to get it are incredible.  My cousin has three children and just got a law degree.  How awesome is that?  She is my hero.

Please support and respect the women who don't have high powered careers.  Or give up jobs they love to raise the next generation of men and women.  Or aren't able to finish a degree because other things in life happen that take their time and attention.  Or for whom college just wasn't their thing.  And you women who are like me, keep rooting for those women who are world leaders and in the spotlight and making enough to support themselves and their entire family.  Aren't we lucky to live in a world with so many women like that?  Anything is possible as long as we have women who can do those jobs and still smile.

I live in America.  I'm White.  I was born in the suburbs and have been privy to opportunity and privilege all my life.  There was never any question whether I could go to college if I wanted to, as long as I worked and did my part to pay for it.  My parents weren't rich by American standards, but they could afford to give us anything we needed to succeed at life, and that is an incredible blessing.  I have those things because my parents gave them to me, because of what they taught me, and because I was born in the right place and time.  I'm lucky.

So can we as White well-off women in a free country always always ALWAYS have compassion for those who didn't grow up as we did?  The ones who didn't have the same opportunities, the same support systems, the same community?  Please, don't let us ever forget that where we live matters, and that there are so many women of different nationalities and races and backgrounds worldwide who weren't born with the same advantages that we were.  Who didn't have the same opportunities, or protections under law, or mobility, or freedoms.  Can we make sure to recognize without judging, to support and love each and every woman who is different than us, and to do what we can to ensure as many women as possible get the same things we do, the things we only had because we were born into them, in the right place and time.  And never, ever let us run out of compassion for any woman who is different than us or had to trod a different road.  We have no idea of their own battles, heartaches, and enforced limitations.  Let's not stand for it.  Let's help fight their fights too.  We are all bettered whenever another woman is raised up to her full potential.  The more equality women have, the greater we all are as a result.

I hope you are starting to see what I'm saying.  We're all women, and we all like what we like, do what we do, and make our own choices as a result of our unique circumstances and resources.  We don't have to validate ourselves by only liking and approving of other women who do things the same way we do.  We are lucky to live in a world with all kinds of amazing women.  And we shouldn't believe for one second that we can only win at this life at the expense of other women.  We can all succeed by loving and helping each other.  No one has to be sacrificed for another to get ahead.  There is no reason we can't all support and help each other.  We know what it is to be a woman; it's hard enough without fighting each other.  So let's all give each other a hand instead.  Let's make ourselves collectively greater.  Because if we all have each other's backs and we all support and root for each other, than this world is guaranteed to be a better place.  A place we want our children and nieces and loved ones to live in.

This is the power we have as women.  Let's make it count.


Saturday, April 18, 2015

Enter, SIBO

So remember everything I told you in my previous post?  Those 7 things no one tells you about living with a stomach condition?  Well, you can ignore it.  Because at least half of it was entirely wrong.

It's true that my gall bladder did need to be removed.  And that it was in fact exacerbating my stomach condition.  But what exactly that was (and what I finally thought I had figured out) turned out not to be entirely correct.  But I'm not beating myself up TOO much for getting so many things wrong, because it took two more GI doctors to get me here.  Allow me to explain.


I had a really great month after I recovered from my laproscopic surgery.  I acclimated quickly to my new life without a gall bladder, and started eating all the foods I had missed.  The scars healed exactly as they were supposed to, I gained some weight back, and I felt healthy and strong.  Life was good.


But by Labor Day weekend, my tummy seemed a bit on the rocks, and by trick-or-treat night, I was in and out of the bathroom all night again.  I hoped it was a fluke.  Then a few weeks later, I had another episode, (when we had invited friends over, which was extra embarrassing.)  It wasn't the same as the gall bladder attacks (no referred pain in my back, and the nausea wasn't crippling, at least)  But my bowels were no longer my friends, and I had to admit that their behavior was not normal.


By a stroke of luck, my previous GI doctor had retired, so his practice set me up with a new GI doctor.  And this one was pretty confidant he knew what was wrong.


It was called SIBO and it was something I had never heard of before.  And my previous GI doctor may have caused it.


GI doctor # 3 told me that the daily antacid my previous doc had put me on creates the perfect environment for SIBO (small intestinal bacterial overgrowth) to flourish.  He set me up with an easy, at-home kit to use and mail in (test tubes and everything, I am not kidding,) and scheduled me for an endoscopy, just to make sure there were no other contributing factors that had been overlooked.


The at-home test was slightly stressful ,(I wasn't allowed to eat anything but unflavored meats, eggs, and white rice for a day) but determined what the doctor had suspected.  The endoscopy followed soon after and confirmed that SIBO and SIBO alone was what had continued to plague me even after my gall bladder was removed.


Unfortunately that was all he told me.  That and, "Antibiotics are the treatment.  Take these."  I was given no other instruction, no information about what SIBO meant, what I should eat, what medicines I should take, etc.  I tried leaving a couple of messages asking what I should do and stating what routine I was currently utilizing, (a particular brand of probiotics and fiber, fiber, fiber) but I never got a call or any answers back.


Unfortunately, I did all the wrong things.  I tried going on a low FODMAP diet (more on that later) while I was taking the antibiotics, because I read online that helps to starve them out, (the internet is maybe not the best place to get health advice, but since my doctor wouldn't tell me what I should do, it was all I had.)  Then I went back to eating as normal.  I finished my antibiotics right before I went on a three week trip to Australia and New Zealand.  I was a little queasy and nauseous during that time, and it took my appetite quite awhile to come back.  But I resumed normal eating habits and assumed I would just go back to a regular, American life.


Nope.


Turns out SIBO is a lifelong condition.  The short version is you have bad bacteria in your small intestine where there should be no significant amount of bacteria at all.  They consume all your carbohydrates and sugars, reproduce, and make byproducts that make you bloated, gasy, generally ill-feeling, and cause your bowels to eject their contents faster that most humans are comfortable with.


Hoooooooray.


I found this out because I got sick in the usual way YET AGAIN, after coming home from abroad and feeling awesome for a month, (notice the pattern?  SIBO responds to most antibiotics, so anytime you take a substantial amount, like after a surgery or for a cold, it beats them back for a bit and you feel better.  But without long-term medication and dietary changes, it always comes back.  Trust me on that.)  I got tired of feeling sick and spending large parts of my day in the bathroom whenever I had sugar, or a lot of carbs.  So I called the GI practice.


Doctor #3 couldn't see me soon enough, (that part about GI doctors not using any urgency about your condition also hasn't changed) and I was scheduled for Doctor # 4 so I could get seen sooner.  Which was fine with me because I wanted some answers and long-term relief.


I ended up seeing Doctor # 4's Nurse practitioner.  This was notably different in several ways.  She spent a significant amount of time actually talking with me about my symptoms, eating habits, and medicine.  Then she outlined the best way to attack SIBO and keep it from coming back.  Then she sent me home with literature.  You know.  Actual information about my condition and what I should do for each part of the treatment.  She also responded within a day to all my follow up questions from the incredible amount of info I was now able to digest about my exciting new condition.


SIBO always has an underlying cause.  In my case, it is my IBS, (I have sub-type IBS-C, for those who are interested.)  SIBO gets a chance to come out and play when your IBS gets out of control (which has been frequently, so no doctor before was ever able to tell me what to DO to get and then stay better,) and it thrives in low acid environments and becomes harder to kill.  So Doctor #2 started the SIBO ball rolling for me by putting me permanently on an antacid which created a playground for SIBO to grow and be nourished.  Doctor # 3 diagnosed me and told me to stop taking the antacids, but failed to help me prevent a relapse by not telling me the three essential ways to combat SIBO.  Here they are - 


#1 The strongest plan of attack with antibiotics available.  This involves taking 1 antibiotic three times a day, and another twice a day (the second one made me queasy, which was fun.)  Then when a course of 10 days is completed for both, you take a very small dose (a fourth of a pill, I had to buy a pill cutter and everything) of a 3rd antibiotic every night at bed, for 3-6 months.  I am still working on this last part.


#2 Dietary changes.  This is to keep your IBS from getting out of hand and giving the SIBO an easy way to regain control of your small intestine.  For the rest of my Earthly existence, I get to stick to a diet low in carbs and sugars.  This is where the low FODMAP diet comes in, BUT it is essential to carb load several days before and all during the 10 day course of antibiotics.  This draws the SIBO out of hiding and causes them to gorge, so you kill as many of the suckers as possible.  I did this correctly this time, even though it made me feel gross and sick most of the time.  Score: Jess 2, SIBO 0.


#3 Meal spacing.  This is the hardest, and suckiest part.  I MUST space all my meals 4-5 hours apart.  I can do ABSOLUTELY no eating in between meals, and no snacking after bed.  Only water, coffee, or tea.  This gives the "natural sweeping mechanism" of my GI tract a chance to clear out all the bad bacteria after every meal and during bedtime, preventing any serious re-growth of the bad bugs in my small intestine.  This can only happen when you have been fasting for an appropriate amount of time.  I also cannot take my bedtime antibiotic until at least 2 hours after finishing a meal.  I also have to do this for the rest of my life.


Got all that?


The very helpful Nurse also told me there is no proven effect of probiotics in pill form for my condition.  She said if I want to help the good bacteria in my system, the best thing I can do is just eat Greek yogurt with active cultures on a daily basis.  Also, I had to stop taking my fiber, (I had switched to a third brand that I loved sweetened with actual sugar) and switch to an unsweetened brand.  This is nasty, but I get through it by mixing a little vanilla rice milk (no sugar added, but it's naturally sweet) in with my water/fiber mix.  Also, I don't have to take milk of magnesia anymore, but can just use some Miralax (a mostly tasteless powder you can mix with any drink) anytime I need.  No more liquid chalk is a good thing.  This treats my IBS-C and keeps it happy so the SIBO doesn't get any bright ideas about staging another coup in my small intestine.  Yay.


So in some ways (medication) my life is much simpler/better.  All I take for my tummy is a yogurt, some fiber, and a part of a pill at bedtime.  I don't have to carry Immodium around with me constantly as long as the SIBO is at bay.  But in other ways, my life sucks much more than it did before.  Meal spacing makes me cranky and fuzzy-headed in between.  My stomach doesn't eat itself as long as the IBS-C stays treated, but I still have to do that whole "try not to be stressed when I'm stressed" thing to keep from triggering the IBS.  That is actually very challenging, because I am really depressed about not being able to eat normally.  And meal spacing might not sound so hard, but it makes my social life and day-to-day a nightmare.  Because if I know I'm having dinner with friends at 6, I have to make sure I get breakfast and lunch eaten and spaced before that so that the 6 o'clock meal falls within 4-5 hours of when I finished lunch, (which has to fall within 4-5 hours of when I finished breakfast.  The cycle goes on and on.)  I can't have spontaneous drinks with anyone because those fall in between meals (I can only have alcohol with my meal, and can no longer have sugary cocktails, fortified wines, or heavy beers.)  I am dreading the next time I go on vacation, (eating on the road is neither predictable nor easy to obtain low-carb friendly foods)  This whole regimen is not something that our food culture or our social culture is designed to support.


I feel so screwed.


A word about the low-FODMAP diet.  I'm supposed to stick faithfully to it for 6 weeks, then I can re-introduce dairy and gluten back into my diet and eat them in moderation if they cause no problems, or eat them with an enzyme if I develop an irritation to either.  That's another fun SIBO fact.  It can cause you to develop food sensitivities.  Which is my worst nightmare, because I love all SORTS of foods.  And a lot of them are not on the low FODMAP diet.


The only way I can think to explain this diet to you is to tell you that I have to constantly carry a chart around with me that tells me what I can and can't eat.  It's not about certain foods so much as it is the way they are processed, or the chemicals inside of them (chemicals I haven't heard of and that no one but chemistry  majors would know how to recognize just by looking.)  Right now I'm knee-deep in substitute flours and milks, and watching my consumption of processed sugar like crazy.  But I also have to careful about fruit.  I can have small amounts and certain kinds, (bananas, blueberries, strawberries, and raspberries are all okay) but others have too much fructose or "polyols" and have to be avoided (blackberries, stone fruits, and apples are all out.)  I can't have any dried or canned fruit at all.  And I have to avoid anything with ANY kind of artificial sugars (which, okay, I'm not real broken up about because I've been trying to do that for years anyway, but start reading food labels and you'll be shocked by how much of that stuff gets snuck into our foods)  I can't have anything sweetened with corn syrup or high fructose corn syrup.  Or honey.  I can have actual sugar, but only in low amounts, so I usually don't have anything with sugar added to it unless I've added the sugar myself and know how much.  I can have most nuts, but no pistachios, and almonds I can only have less than 10 at a time.  I'm not really supposed to have vegetables that cause a lot of fermentation once eaten (beans, lentils, chickpeas, broccoli, onions, garlic, etc.) but thankfully I'm allowed to cheat on those as long as I take an enzyme that helps me digest them beforehand and don't have too much of them, (so the Richmond chili cook-off my husband and I attended every year is now out of the question for me.)  I can only have small portions of sweet corn or avocados, (one of my favorite foods) but somehow I'm allowed to have corn meal.  I can have soybean protein (tofu, tempeh, etc.) but not anything made of the actual soybeans (edamame, soybean milk, etc.)  And I can only tell you all this off the top of my head because I'm 3 weeks into this diet and I've had A LOT of practice at this point.  And even though I'm supposed to be low-carb, I can somehow have all the rice I want?  So it's been lots of rice milk, rice flour, and rice pudding (homemade with lots of yummy spices and hardly any sugar, and sweetened with....rice milk.  Yep, most Americans are made mostly of corn because of their diets, but I am slowly turning into rice.)


If it wasn't for sushi and injera and red meat, I would have starved at this point.  I never much liked most other meats, and I'm supposed to be eating a lot more of them, which is not palatable to me.  I tried (and failed, miserably) to eat only eggs and bacon for breakfast, then had to switch to oats and rice pudding with bananas and (you guessed it) rice milk.


Sometimes my husband makes me a half and half latte just to try and keep the pounds on me.  (That's another one I forgot to mention.  No milk, powdered milk, or condescended milk, no soft cheeses except for feta, and no sour cream, but I AM allowed to have yogurt, half and half, hard cheeses, and whipping cream.  Let me know if you understand this diet, because I still haven't really figured it out.)


Eating food with friends used to be my chief joy in life.  Now it stresses me out, (which I'm trying to learn how to cope with, because stress will trigger my IBS-C, and then open the door for SIBO again.  Cycle, cycle, must break the cycle...)  I have to be forceful about where I "want" to eat, not because I don't want to go for Chinese or pizza (I would happily murder some JETs or Chai Thai right now!!!) but because I can't eat at  most places on my current diet.  I order hamburgers without buns, even though I used to laugh at people who avoided gluten to be trendy.  I don't want to avoid gluten, because it's one of my favorite substances in food, but I do want to get better and so I'm trying.  I'm trying so hard....


During my birthday, I was on the the carb-loading part of my diet and was explaining to my family what my "new" diet was going to look like.  I was showing my chart to my parents and telling them things about all the nuances I was going to have to live with and trying to be brave and not cry.  And then my sister snapped, "Can we PLEASE talk about something other than SIBO?!"  And I had to try not to cry even though I was really hurt.  Because that is stress.  And stress starts the cycle, and I have to somehow break this cycle.  Which feels impossible sometimes.  Because American culture is geared completely differently from the routine I have to stick to, and that makes me feel like I've fallen into a trap that I don't have the tools to break.


Please.  Please let me break this cycle.  Because I want desperately to make my own bread again and have it with fresh jam and goat cheese.  And I want to be able to eat dessert with loved ones and not worry about being sick all night.  And I want to be carefree, but I can't because I have to meticulously plan everything I eat and when I eat it, because if I don't then I might start this whole cycle all over again.


I've been doing this for over 3 years.  And I'm sick of it.  And sick from it.  And I don't think I can take anymore.


And that's my life now.  That's what it's like to live with IBS-C with the continual threat of SIBO.


I'll either need counseling, or I'll snap and eat a giant chocolate cake all in one night then be sick for weeks and begin it all again.


Oh please, I can't begin this again.


Do I have the strength of character for this?  Will my husband continue to be the never-ending source of love and support he has been?  Or will he eventually get sick of all my whining and woes and, like my sister, ask me to talk about something other than SIBO?  I don't want to be scared and over-emotional all the time.  But I constantly have to fight against that, all the time, every day, just like I have to fight against the urge to eat bread and drink real cappuccinos, (coconut milk lattes are yummy, and half and half are decadent, but they aren't the same as a cappuccino the way it was meant to be with real, whole milk that comes from a cow and not from a plant.)  And I have to fight against the urge to eat dessert after a meal, unless it's a dessert I made myself with a very small amount of real sugar in it, or a tiny piece of dark chocolate without all the junk added.  But I try to soldier on and I try to stand it, because if I fail I go back to start again.


And I am so done with SIBO.


I want my life back.


Screw you, SIBO.

Sunday, September 21, 2014

7 Things No One Tells You About Living with a Stomach Condition


About two and a half years ago, I was diagnosed by a GI Doctor with Irritable Bowel Syndrome.  Irritable Bowel, or IBS (as I will lovely refer to it for the rest of this article) is basically the medical term for what you’ve got once they’ve ruled out all the other really scary and serious stuff that could be wrong with you, but it’s still quite apparent that your digestive tract is mildly pissed at you most of the time.  This is determined by many tests, trials (and errors) with food, and boughts of forcibly ejecting the contents of your stomach (I call this ‘fro-ups if I have to talk about it in polite company), internal discomfort, and what I like to refer to as the “super poops.”  It’s a bit of a road to get there, but it’s what you end up with once the doc is sure you don’t have any of the other stuff.

In the interest of full disclosure, let me just say that I consider myself lucky.  If you have to have a stomach condition, IBS is the one you want.  You don’t get the crippling pain of Crohn’s Disease or Diverticulitis, and you don’t get the diet restrictions of either of those and some of the others.  This was particularly important to me as I love food.  I was literally, and I do mean literally, praying to God to spare me while they were running the blood test to determine if I had Celiac disease or not, because a life without bread is one to me that barely seems worth living.  So IBS is the best case scenario.  I can generally eat what I want (within reason) and usually don’t have serious pain.  I’ve never ended up in the hospital due to my condition.  So in the realm of stomach issues, it can certainly be concluded that I am one of the fortunate ones.

That being said, there are simply things nobody explains to you beforehand about what it’s like to live with said stomach condition.  Things like…

#7.  You Will Monitor Your Own Bowel Movements as Closely as a Mother Does with Her Firstborn Child

My younger sister had her first baby a little over a year ago, so I know what I’m talking about with this one.  On more than one occasion, I have listened to my sister and her husband, people who are both educated and have successful careers, talk about poop and all its many possible forms, at length.  And it is with great sadness that I inform you I must now pay as much attention to my own feces as those two do with my adorable yet poopy little niece.

Have you ever not pooped for five days or more?  Because that is often my Tuesday.  And that’s the better end of the deal.  With IBS, you can ratchet back and forth between being blocked up tighter than Atlanta’s highways in an ice storm, and having the aforementioned “super poops” with no end in sight.  I regularly carry Imodium around with me.  That’s just normal.  And when I’m not doing that, I’m often calculating how much longer I can wait for the fiber and other bowel-friendly products I consume to catch up, before biting the bullet and taking milk of magnesia.  Because if I don’t make that call, my body will do it for me, and if it gets to my bowels before I can, then I not only get a healthy bought of “super poops” as a result, but I get a lot of pain and nausea that come with it (free of charge!) 

My GI doctor reassured me that I could take milk of magnesia as often as I need to, and I didn’t need to “worry” about it hurting me.  What he doesn’t understand is, I don’t “worry” about taking too much; I worry about every time I have to force myself to swallow stuff that tastes like stale mint or cherry flavored chalk powder, (my throat is clenching up just thinking of it.)  It doesn’t matter how it’s flavored. It all tastes like death.  But I do it, to avoid my body’s even worse version of “Full Inventory Liquidation – Everything Must Go!”

I have developed euphemisms just to talk about what’s going on with my pooping for the day without completely grossing myself out, or my husband, when he’s kind and brave enough to ask.  We affectionately borrowed the phrase “making bears” from one of his old co-workers, and I leave you to imagine on your own what koala bears, bear cubs, and a grizzly bear attack all mean.  (Hint: koalas are surprisingly mean for their size, bear cubs are little but not entirely harmless, and a grizzly bear attack is something you’re not always sure you’re glad you survived.)

Yes, nothing makes a woman feel sexy like having to constantly monitor and talk about her own poo.

#6.  The Doctors Involved Often Have No Sense of Urgency Regarding Your Condition

I have a good friend whose husband has one of the much worse stomach conditions.  One of the kind that involves inflammation, severe pain, weight loss, and jaunts to the hospital. When he first started having issues it took his family doctor 4 months to get him seen by a GI doctor.  Then, when he needed to go back in for a flare up, the GI doctor said they couldn’t schedule him for another 2 months.  And the first ER trip his stomach condition forced him to make, he was kept waiting 7 hours before he was finally seen.

I don’t know if there is any data available on average wait times for people suffering from stomach ailments, but I would guess that this is neither unusual, nor a good idea for those doing the actual suffering.  Why, you ask?  Well, while this poor young man was waiting just to be looked at, he lost about 20 pounds and could eat only white foods.  And this is 20 pounds from a guy who was a healthy weight when the whole thing started.  He did not have 20 pounds to lose.

And this is in America!  Our motto is basically “thank goodness we don’t have to wait forever and a day for medical treatment like those poor schmucks in Canada.”  Land of the “don’t take our guns because we’d rather shoot ourselves in the foot than wait for medical services, which means we’re” free.  We’re proud of our privatized medical system.  Socialized medicine is for people who don’t mind waiting!

So you can imagine my shock in discovering that if you have a stomach condition, you are pretty low on the “the doctor will see you now” totem pole.

Look, I get it.  It’s not a heart problem.  We’re not in danger of immediate death.  But I don’t think that the loss of enough weight that puts you in the “no longer a healthy human being” category is acceptable either.  My insurance company is certainly letting me foot enough of this bill that WAITING for that long just doesn’t seem like what I’m paying for.

My own recent experiences were similar.  The first time after I’d seen my GI doctor, I was taking a two week trip to Europe with my husband.  So I wanted to have a follow-up with my doctor before I left to discuss what was working, and what kind of regimen I should stick to while overseas, along with getting a note that said I needed to carry the amount of meds I was taking with me.  I called several times and couldn’t even get the courtesy of a call back.  When I finally got someone to pick up the phone, they refused to commit to a date before my trip (this was a couple months in advance, mind you.)  I had to get my husband to call and basically force them to give me an appointment, so I could ensure that I would be able to go off to Europe and do crazy things like “eat food” without any trouble.  And after explaining this several times to the receptionist and the nurse, when I was finally in front of the doctor and had to explain yet again why I was there, he gave me a blank look and literally asked me, “so what is it you want me to do?”

The second time I learned about the joy of waiting was even better.  In a story I’ll get into more later, I basically learned that my gall bladder was trying to kill me.  From the time of my first gall bladder attack, it took an entire month just to get the cursory scans run and get scheduled to see a surgeon, (which was only accomplished by again employing my husband to use his charm and persistence to get me an appointment) and then it took almost another month to get the gall bladder removal surgery scheduled.  That meant I was on a no-to-low fat diet for almost 2 months, and this is not something I can recommend unless, again, you are personally trying to lose weight.  (And even then, seriously, don’t do it.  It’s not good for you.)  I lost about 8 pounds while waiting for the ability to eat food that actually had any significant amount of fat in it again.  I also tend to run a bit on the thin side, (my family used to lovingly refer to me as a “stick”, and my Middle School basketball pictures can attest to the fact that there wasn’t much to me other than arms and legs.)  I gained a few pounds once I got married, but for the first few years, during my yearly appointment with the lady doctor, she would question me closely about my eating habits and my mental well-being, trying to make sure I didn’t have some undiagnosed eating disorder.  I didn’t, but I could understand why she suspected me, all the same.  So when I lost 8 pounds I couldn’t exactly afford to lose, I was worried people were going to start calling me “stick” again.

Which leads me to…

#5 Your Doctor Won’t Give You Details About What You’re Putting into Your Body (Unless You Specifically Ask)

Let me tell you a bit about my regimen, because I can’t imagine anything more exciting than to discuss what I have to ingest on a daily basis.  In order to currently keep my IBS under control, assuming all other factors are normal and it’s a “good day” I take the following –

~ a prescription antacid to keep the pain and discomfort from an imbalance at bay (I have to take this in the morning, at least 20 minutes before I eat any food)
~ a probiotic with “live cultures” to keep the balance of good bacteria in my favor (more on that later)
~ another probiotic that allows me to digest milk (more on that later, too)
~ a heaping teaspoon of psyllium husk fiber mixed in with at least 8 ounces of water, and chugged all at once before it clogs up and becomes undrinkable, (sometimes I pretend I’m drinking an Irish car bomb instead, but my imagination must be broke, because it doesn’t really help.)  I take this charming concoction twice on days where I eat a lot of cheese.

If I do all that and don’t miss anything, there is a very good chance I won’t have any serious issues (most days.)  It’s fun to coordinate, because you can’t take fiber within more than an hour and a half of taking your medicine, and you can’t take medicine within 2 hours of taking your fiber, because fiber is the parasite of the supplement world, and gloms on to anything else that gets near it, masking its effectiveness.

I am a joy to travel with, as many little bottles, packets, and pills that I have to have handy.

Since I’ve mentioned the fiber, now, I want to tell you a little story about the discovery I made, a year after I had been diligently taking the fiber the doctor give me.

As most of you probably know, doctors get all sorts of free samples of medicines and the like to hand out and get their patients cheerfully addicted to.  My doctor gave me some handy packets of a big, name-brand fiber, and I took it, without question.

I sometimes make the mistake of trusting doctors implicitly, and this time it came back to bite me in the ass.  One day, a year later, I happened to glance at the back of one of my fiber packets (which I had been buying in bulk) when I suddenly noticed an ingredient in my fiber I had failed to realize was there.

It was the dreaded aspartame.

That’s right, I had been putting aspartame into my body, voluntarily, for almost a year.

Now I know the stuff probably isn’t going to kill me.  I understand that the claims to links of cancer and other diseases have been pretty much disproved at this point, but that doesn’t change the fact that I would never choose to put that stuff in my body, if I could help it.  Because the box said “sugar free” on it, I assumed (quite wrongly) that meant it had no sweeteners or sugar of any kind.

Now I am not going to deny that I should have asked what was in it, or could have even looked before a year had gone by, but I, like so many Americans, trusted my doctor, and didn’t even think to wonder about what it was I was ingesting on a regular basis.  Which brings me to my point – if you don’t ask, they won’t tell you.  My GI doctor doesn’t care that I’ve been drinking aspartame for a year.  He just cares about passing on that product that he got for free.

Anyways, I switched to an organic fiber that has ingredients I recognize and is sweetened with beet root (you do have to sweeten fiber with something or it tastes almost as disgusting as the chalky death liquid that is milk of magnesia, and my throat muscles haven’t mastered swallowing bilge everyday without protest) and gave the box of name brand fiber to a diabetic lady I worked with who had a similar regimen and no objections to aspartame.

Unfortunately, I still suffer from another problem, that being…

#4 You Become Obsessed with the Culture of Your Gut

No, I’m not talking about making sure my stomach listens to enough Mozart, or that my colon understands the beauty of chiaroscuro shading.  I’m talking about the colony of bacteria that lives in my gut and whom it has become my full-time job to constantly appease.

As I understand it, everybody has a mixture of bacteria in your gut.  There is good bacteria (or “the home team” as I like to think of them) and bad bacteria (the kind that causes certain diseases and infections if its population swells enough to overpower the “home team.”  Let’s call them “the insurgents” for the sake of this article.)

My new lifetime goal has become making sure “the home team” wins enough of the wars that “the insurgents” don’t turn the battle field (aka my GI tract) into scarred and desolate ground with no hope of regaining its former glory.  This is my mission in life, because if I don’t succeed, I’m in discomfort and I’m probably suffering from the ‘fro ups and the super poops for an indefinite period of time.

I achieve this with the magic that is probiotics.  Basically, little capsules full of beneficial, live micro-organisms that bolster the colonies of what’s already down there and create new, also beneficial hives of happy flora and not-quite-fauna-but-more-likely-bacteria.  In other words, there’s a big tailgate going on every time I eat or get exposed to other kinds of bacteria, and I’m recruiting the tail-gaters to help out “the home team” while sending in subs and the like before everyone grows tired and gets overwhelmed by “the insurgents.”

This is my life now.  Envy me.

Normally, it’s a pretty easy job as long as I keep religiously to my regimen (and I do mean religiously.)  Because if I miss so much as a pill or powder, nevermind get off my schedule for an entire day, that’s when “the insurgents” pull out the guns and bombs and possibly chemical weapons, and start causing real havoc.

When you start with probiotics, it usually takes about a month for the new recruits to team up with “the home team” and get down to business.  In the meantime, “the insurgents” keep up their shelling, and shooting, and general causing of death and pain (see note on “super poops”) until the home team finally has enough ammunition to take over the battle ground and attempt to make it a beautiful place where healthy bacteria all want to live.

The good side of this is you don’t have to take Imodium or milk of magnesia every week, and you can live what is almost a normal life.  Probiotics even have the added benefit of sometimes bolstering your immune system.  I don’t get half the colds and such my husband does during the year, even though I’m exposed to most of the same stuff that he is.

The other fun part is that after 6 or so months, “the insurgents” have figured out all your current probiotic’s tricks and battle strategies, and start breaking through the defenses, and so you have to switch your probiotic to a different one in order to throw them off and retake the battle ground.

But that is at least somewhat manageable.  The real problem comes when you miss your medicine, or worse, when ”the insurgents” come up with a weapon so good, it leaves “the home team” staggering and wondering how they can find the will to go on.

Like the time I got the stomach virus.

My family had been passing it around for awhile and I thought I had missed it.  But then, a few days before Christmas, it hit me, and it hit me hard.

I won’t gross you out too much with the details, but I will tell you that it was the sickest I have ever remembered being, and I lost something to the effect of 9 pounds in water weight.  (I was quite a “stick” when it was all said and done.)  I probably should have gone to the hospital, but I didn’t, and managed not to get so dehydrated I died, as I slowly started gaining back my water weight.

The problem with getting something like a stomach virus is that, aside from making you completely miserable while it’s going on, it completely decimates the culture in your stomach.

That’s right. All those careful months I had spent lovingly cultivating those happy little organisms in my tum were wiped out in one 24 hour period, and I was starting from scratch.  I had the bare minimum of guys required for “the home team” to even continue playing without having to forfeit.

Which means I not only had an angry gut, but I got a cold as soon as I recovered from the stomach virus and was a coughing, snotty mess during Christmas, (my poor husband had to cook all the food and do all the cleaning since we had brilliantly decided to host my family that year) but that wasn’t even the worst part (at least not according to me.  You might want to ask my husband his opinion about Christmas when he has a glass of good Scotch in his hand.)  No, the worst part was that it took me 2 months after that to get “the home team” back up to snuff enough that they could even begin to compete against “the insurgents” again, which means for two months I didn’t feel very good most days.

And that is my life, but it still doesn’t address the fact that…

#3.  There Are Other Surprising Things That Effect Your Condition, Even When All Other Factors Are Optimal

I am one of the many women on birth control.  I’m not ashamed of that, and I’m not thrilled at the political bru-ha-ha that surrounds it, because it’s one of the best things that has ever happened to my body.  The weeks I take my birth control, my body functions fairly well, I feel fairly good, and I’m not surprised with a baby I’m not ready to grow inside my cranky body.  It’s great.  It’s especially great for my stomach condition, because while I am on my birth control and all other factors remain normal, my stomach condition gives me nary a peep.

But the week I am off my birth control, weird things happen.

My stomach condition decides that this is a good time to act up.  I get acid-indigestiony pain along with my cramps and bloating (joy of joys) and it generally doesn’t settle back down until I’m on the birth control once again.

My doctors find this “interesting” and “strange,” but they don’t have a clue why this happens.

I also happen to have a sinus condition (vasomotor rhinitis) along with grass allergies, which gives me sinus headaches ranging from annoying to “someone please stop my entire face and neck from hurting before I scream,” and which also decides to act up during my week off, as it were, (and is possibly the subject for another article and another time.)

Nothing is more fun than when my stomach condition and my sinus condition team up.  It’s like “the insurgents” find “religious extremists” who hate each other, but basically have the same goal, and they run amuck together.  Thankfully, I know this at least will end when the week is over, and I’m back on the no-babies meds.

The jury is still out on why this happens.  But anytime it wants to stop would be fine with me, because there is literally nothing I can do but medicate myself and wait for it to be over.

I also have to make sure I eat at regular intervals (every 4 hours or so) because if I don’t send a steady stream of food down there, my stomach decides to start chewing on whatever is already down there.  Since the answer to this is “itself” and that answer hurts quite a bit, I work hard to avoid this.  Times when not even snack sized foods are readily available are tough for me.

I had two rounds of gall bladder attacks two years apart, and part of the reason they didn’t take it out the first time, or right away the second time was because some of my symptoms were gall bladder, but some of them weren’t.  And you know why I think that is?  Because I’m pretty certain that things like gall bladder attacks can trigger my IBS.  So I’m showing conflicting symptoms, because my gall bladder decided to team up with my IBS and go for the gold.  They can work together to make me miserable and make doctors uncertain what’s really going on.

My GI doctor once told me that even though all the stuff I was going through was stressful, I had to try not to get upset about it.  Why is that you say?  Because stress can also trigger bad IBS episodes.  So I have to remember to not get upset about the very upsetting pain and spastic colon issues I’m experiencing, because that actually might make it even worse.

But now I bet you’re wondering what it’s like to hold down a 9-5 type job (which I do) while simultaneously managing this condition.  Or go on vacation.  Well, the one thing I can tell you is that…

#2.  You Plan Your Entire Day Around the Bathroom

Even on a good day, I probably go to the bathroom on average of 15 or so times.  Most of this is usually #1, and so it’s not too worrying.  See, in order to keep my tummy fairly happy, I have to drink a lot of liquids.  My morning coffee is almost essential if #2 is even going to be a hope, and after that I have to drink lots of fluids just to keep everything generally appeased.  But the best part is when I chug my daily fiber with the minimum of 8 ounces of water mixed in.  I’m not sure how this works for everyone, but for me, there is always a point where that 8 ounces or more of liquid suddenly drops into my bladder with the force of Shamoo competing in a cannonball contest, and suddenly not running immediately to the bathroom is not an option, unless I want to continue my day with noticeably damp pants.  After the initial “release” as it were, I go 2-5 times more over the next hour until all that chugged liquid is out.

And I won’t even talk about “bad days” where I forced myself to take milk of magnesia the night before to flush everything out, (pun intended) or when I’m being subjected to a different round of my dear old friend “the super poops.”

When my boss (who is an amazingly understanding man) hired me for my current position, he asked me if there was anything else he needed to know about my ability to do the job.  Since he had been involved during my first bought of gall bladder and GI issues, and he knew about my stomach condition, I felt it important to remind him that the IBS meant I had to be “up and down” from my desk a lot.  Thankfully, he said this wasn’t an issue, but think of all the other jobs and employers out there in the wide world who wouldn’t share this attitude.

Despite his understanding, I still feel responsible to compensate for my bathroom time.  Because of this, I don’t take the two 15 minute breaks I’m entitled to, but count all the time I’m forced to spend on the potty towards them.  And I don’t leave until all my work is done, even if that means my IBS forces me to stay another 15-30 minutes to make sure that’s done.  It’s rare, but it happens, and I have a reputation to keep up despite my stomach condition’s best efforts to sabotage that.

Vacations and other outings can be a nightmare, therefore, because I always have to ascertain where the bathroom is located, make sure I can get to it, and never, EVER take my fiber, if I don’t know that there will be a bathroom in easy reach when that first liquid payload gets delivered.  This can make my life very exciting.

Thankfully, my husband is practically a Saint, and doesn’t get fussed about this or tease me nearly as much as he might.

Which brings me to the best part about having a stomach condition…

# 1.  Your Perspective on Things (Like Surgery and What You Can Eat) Makes a Surprising Shift

Let me tell you a story.

I’ve had stomach troubles since my early twenties, (mostly acid and mild discomfort, with the occasional up-all-night episodes) but the real fun started two and a half years ago, right before I turned 29.  I started getting some serious pain, and regular bouts of the ‘fro ups and “super poops.”  My family doctor tried for awhile to diagnose me, then sent me to the GI doctor when he had no success.  The GI doctor ran some standard tests, but the only thing that came up was that I was told I had sludge in my gall bladder (or “Smooze” as I liked to think of it, since I grew up on the My Little Pony movie.)  They did a gall bladder function test, but that one came back good, so they told me I didn’t need to worry about my gall bladder anymore.

I was not convinced.  They said there was sludge in there, but I’m not supposed to worry about sludge?  I mean the word sludge just sounds creepy and disgusting and very worrisome.  Say it out loud.  SLUUUUUUUUUUUUUDGE.  Is that a comforting word to you?

Well, the doctor decided I had IBS, and I started my regimen of probiotics and antacids and fiber.  But even at the two month mark I was still getting the occasional bad bought of the old “super poops” and my doctor had no idea why.  Eventually, I started writing down everything I ate and noticed every single night I had another bad attack, I had consumed a meal very high in dairy that same evening.  So as an experiment I tried taking an additional probiotic that contacted lactase in it (the enzyme that allows you to digest milk.)  From then on, I had no boughts of “super poops.”  Problem solved!  I didn’t even bother to tell my doctor about it, I was just that relieved to have a routine where everything worked again, and didn’t want him to try and tell me otherwise.

Then about two months ago after dinner, I got so nauseous I couldn’t even sleep or lay down.  My old friend S. Poops came back for a visit and on top of that, I had this crippling pain behind my right shoulder blade that would have kept me from sleeping if the nausea hadn’t already been doing such a good job on that one.

The next day I went to work feeling hung over, and thinking I had just had a bad night.  I was super careful with everything I ate that day, and then attempted to have some mild Indian food that night (don’t laugh, I eat Indian food all the time, and it never gives me issues like this, so to me that was comfort food.)

And I got super sick again.  Same nausea, couldn’t lay down, same horrible pain behind my right shoulder blade.

And I KNEW it was my gall bladder.  I just KNEW IT.

It was past Urgent Care hours, so I called my insurance line’s nurse that night and asked her if I should go to the hospital.  I described my symptoms to her, hoping she would agree with me about the time bomb ticking within me, and tell me to go in and have that sucker taken out.

But the nurse wasn’t sure.  She told me to go on a very restrictive low-fat diet, and see my family physician the next day.

My physician said the same thing as the nurse.  Some of my symptoms were gall bladder and some were not.  But I KNEW.  Ever since the sludge, I was convinced that it was only a matter of time before that sucker got me again, and so despite the doctor’s hesitation (I started with the one on the weekend shift at the practice, and he had me follow-up with my family doctor, who has been seeing me since I was 8 years old) I basically told him to please check my gall bladder to make sure it wasn’t the issue.  My doctor, thankfully, agreed.

And sure enough, the ultrasound showed that this time I had sludge AND small stones.  So my doctor referred me to a surgeon.

In the meantime, I was on one of the worst diets ever made for a person who loves food.  No red meat.  No pizza.  Very little dairy.  No fried bread, or donuts, or other pastries.  No joy.  Just salad, lean meats, simple carbs, and fruits.  I ate A LOT of sushi, and it was the only food I never really got sick of.

A month in I got an appointment with the surgeon.  Still stuck on the diet.  A month later I had my gall bladder out and could finally transition back into eating fatty foods again.

And here’s the thing.  I was the happiest, best-natured surgery patient those nurses and doctors at the hospital had ever dealt with, (I probably can’t say authoritatively, but I think it’s a pretty good, educated guess)  Because having to live with that crippling referred pain from my gall bladder behind my right shoulder blade, having nausea so bad I couldn’t sleep, even though I was incredibly exhausted, and having to eat what was essentially rabbit food for TWO months, shifted my perspective so much, that surgery was a walk in the park by comparison.  I was looking FORWARD to it, because it was an end to the pain and to the diet restrictions that caused me to lose 8 pounds.

Understand this.  I WANTED to have surgery.  I DIDN’T CARE that they were going to have to knock me out with anesthesia, put 4 holes in me, and forcibly remove one of my internal organs, (laparoscopy is amazing.)  Because in my mind, holes and short-term pain were still a happy option compared to the alternative of going on the way I was.  I couldn’t get that surgery scheduled fast enough.  On the day of surgery I was smiling and thanking everyone who was involved profusely.  The only part I flinched at was the IV.  Everything else was cake.

Not only that, but the first time I was able to eat pizza again, I almost cried.  The first time I had a bite of porterhouse steak again, I wanted to weep openly.  The first time I ate ice cream again, I danced in my seat.  And the first time I had my husband’s homemade mac & cheese, smothered with cheddar béchamel sauce, and the first morning I had a whole milk cappuccino again, I made noises I’m pretty sure should only come from sex.  It was that good.

It was like I was rediscovering food, was rediscovering joy, and was rediscovering life.  Having something that makes your stomach condition even worse than what you’re used to, changes your perspective enough that you have a very different outlook on life.  An outlook where surgery is the best thing that can happen, and the sight of pepperoni on top of melted cheese brings you to tears.

And that, in a nutshell, is my life.  Gall bladder free, and proud to be.